Finding A Way – Living with Cancer while Living Well – officially is one year old. I am amazed at how much I’ve written and have grown as a writer. It is a good time to review the year and make goals for moving forward.
In the beginning, I wrote about what I searched for in order to be my best. I sought to find ways to increase my strength and stamina. I wanted to stay motivated and never give up my belief that I am healthy. I planned to lead and live by example. I’ve always searched for purpose and meaning in my life.
I am interested in finding joy, positivity, strength, and hope. Finding A Way involves living with cancer while living well. I wanted to achieve this for myself but also hoped that by writing some of my thoughts and story that I would be able to help others find their way. My intention has always been that anyone reading could come away with something to apply to his or her life whether that person had cancer or not.
Strength and hope are two themes I’ve spent a lot of time on. I suspect they will continue to be common themes for posts. Other themes I plan to explore more deeply are identity, fear, trust, perspectives, and change. I enjoy exploring topics through story, metaphors, and when using narrative lends itself to showing these concepts in action. Using these elements provide a visual hook for me and tends to solidify meaning. I remember things better when I have a story attached or have made a personal connection.
Health and exercise have been and will continue to be repetitive threads in my posts.
Frustrations (and perhaps positive experiences) of my interactions with the medical world as I navigate it from my position as a patient may become more common.
I plan to continue posting positive quotes on Wednesdays to add a bright spot into people’s weeks.
My most viewed post was Stage V and Kardashian Power. I have never watched the reality show or follow them in the news. My intention to live and lead by example and change perceptions, definitions, and conversations around metastatic cancer is still a main goal of mine. I know what the statistics say regarding metastatic breast cancer but I still choose to live with a mindset that has moved past the confining medical constraints and live in expectation with my own. I continue to be surprised at what appeals to people. I find it absolutely hysterical that my most liked post was Exercise and Nutrition. At last count, it had 31 likes. I’m so not an expert.
I don’t feel like I’m an expert in anything. I just write about my feelings and how I’m trying to live well with cancer.
I’ve looked over my posts and have identified some of my favorites. I have many! These are listed below and you may click on any of them if you’d like to look back and reminisce. If you are a new reader, I hope they provide insight into what I write about, how I think, and that you enjoy them. I may repost some of these that I want to highlight again. They are still relevant. There is no need to reinvent the wheel if the wheel I’ve created still rolls well.
I plan to continue to write about my life. I invite you to follow along as a subscriber on WordPress by clicking on the gray or blue “Follow” button, or become an email subscriber and receive an email notification whenever I post something new. Please also remember to like a post if you enjoyed it. Comments are always welcomed. I encourage you to leave one. The prompts I provide at the end of some posts are only a guide.
I appreciate you all as readers and taking the time to read my words. Your emotional support means a lot to me. I wish each of you the very best on your search to find a way, as I keep searching for mine.
Find a way.
What have been favorite posts you’ve enjoyed as a reader?
What topics or themes would you like to read about in the future?
Words are powerful. They entertain, inform, and persuade. Whether written or spoken, words communicate. Something.
Writing is a way to self-reflect, express my beliefs, and share my voice with others. Tara Parker-Pope wrote an article in The New York Times titled Writing Your Way to Happiness. One path to happiness is through writing a personal story.
The goal is to create an “optimistic cycle that reinforces itself.” She explains that although our inner voice is choosing the words as we write, we can go back and edit our story. For example, I may choose to write a story about a session with my trainer, or planting morning glory seeds, or being kept awake by a thunderstorm. Rewriting it can bring about behavioral changes, improve happiness, and lead to better health.
Bringing about behavioral changes, improving happiness, and working toward better health are all important to me as someone trying to live well with cancer. I’ve written quite a bit about the progress I’ve made with my trainer. Through the rewriting process, I discovered how negative self-talk hinders me in my training sessions and then I made some changes. Maybe I’ll write a story about morning glories and understand why they make me so happy. Writing about sleepless nights during bad weather may motivate me to sleep in my basement where I can’t hear anything which in turn makes me feel a lot better the next day.
Stories lead us to better understand ourselves.
For anyone interested in journaling specifically about health, consider the following prompts:
What changes do I want to make in my behavior? Why do I want these changes? What is it I am hoping to gain? What is my plan? How can I take the first step?
What things make me happy from the inside out?
What small goals do I have that can lead to better health?
Or write a story about morning glories or something you think is entirely irrelevant to your health. After it’s written, you can look for possible connections that you didn’t see at first.
Timothy Wilson has researched writing as a way to change core narratives successfully and calls the process “story-editing.” His background is in social psychology and focuses on self-knowledge and behavior. I recommend one of his books, Redirect: Changing the Stories We Live By, for further reading if interested. He sees writing as a pathway to bring about change. A writer writes for about twenty minutes a night for three to four nights, and each night goes back to edit the narrative. The outcome is that a more honest narrative is written through reflection on consecutive nights.
It’s an enlightening process.
Try it out: Think of a recent situation where you felt some anger.
Anger is a wonderful feeling to use for this exercise because you have automatic conflict.
On the first night, just write a very brief account to get the bare bones of the event written. It’s nothing fancy. Focus on your feelings another night and how to convey those through descriptions or specific actions. Add dialogue another night. Or just see where the writing takes you each night. You really don’t need a plan if you don’t want one. Just write.
Sometimes I wind up with an entirely different piece of writing than when I started.
I see writing your way to happiness as much more of a “revisioning” of a core narrative than editing, especially where endings are concerned. Revising involves bigger changes. Some parts stay, some go. Ideas are expanded. You try things out and see if they work. In Wilson’s book, one of his exercises is called “The Best Possible Selves.” He asks a writer to imagine his or her life twenty years from now and write about how everything has gone as well as it possibly could. Details about how the events of things happened are to be included, as well as meaning, hope, and purpose. Again, writing for twenty minutes a night for three to four nights is part of the directions. It gives your subconscious time to ruminate and work through whatever needs more thought so you can make more progress the following night. I think this is the same reason you are asked to write in the evening.
The part about including details about how future events happened is important. Being specific helps you form a picture in your mind of what you want. It makes a picture with words. Adding meaning, hope, and purpose also makes your vision super clear. Clarity in meaning and purpose makes what you want more probable.
I can tell you in my version I am completely healthy, retired, and enjoying every day doing the things I love. Writing sets a powerful intention more than thoughts or spoken words. It involves being really clear on what you want and organizing your words in the best possible way to express your specific intentions. I found that reading what I wrote out loud to someone after I completed the exercise also very revealing because my soul really responded to the core beliefs that I hold the dearest about my future as I put it all out there to the universe. Writing your way to happiness is one positive affirmation after another.
Writing something down tells your brain that your ideas, thoughts, and goals are important.
Writing engages us with our thoughts and helps us process emotions. It makes those thoughts concrete. It prepares those thoughts for becoming actions. Writing really serves as a blueprint or map for all that unchartered emotional and mental territory. Regular journal writing about feelings or uncomfortable events can help lower anxiety and help a person sleep better.
In the world of living well with cancer, I have both read and written. I am still learning how to write what I know and believe about cancer.
This is how I break down words about cancer:
Medical journals/scientific articles on cancer findings/advancements. I’ve avoided reading many of these articles and journals as they aren’t written for patients. Once it was suggested I read one per month, but I found them confusing. Or upsetting. Or not applicable.
Test results also can be confusing (or upsetting, or have unclear applications), however, these are much more important to understand because they affect the patient intimately.
A personal health journal to document the factual side of a cancer diagnosis. Surgeries, treatments, radiation, medications, side effects, tests, appointments, and schedules fall into this category.
Diaries/journal writing from survivors, thrivers, lifers, however a person best identifies. There are narratives filled with tips. Some write about living with cancer. Some write about beating cancer. Some write about dying from cancer.
Fictional stories where characters have cancer. They read differently than biographical accounts but contain many of the same sentiments of life and/or death. Some hit the mark – others do not.
Advocacy writing that argues for better research and treatments for later stage cancer patients. In my opinion, the world needs more of this kind of writing. People focus on the wrong drivers of “awareness” or accuse women and men of being “negative” if they write about the hard, scary, and ugly parts of cancer. Change will come through advocacy. Current widespread attitudes need to be challenged.
Celebrities sharing their “I never let cancer get the best of me” stories. How courageous . . . and . . . inspiring? I think it’s just ducky if they never experienced one moment of fear, doubt, or anger. If you can’t tell, I don’t believe them. I would be more impressed if they used their platform in the public eye (that is much more far-reaching than mine) to put a mark on metastatic breast cancer that can’t be ignored or dismissed. It makes me sad. I feel like they don’t understand. Maybe they can wear pink and that will make it all better.
Private writing reflecting on some of the questions above or your own.
A few write blogs. 😉
Am I missing any?
Writing forces a person to process a pesky thought that has been floating about unrecognized or undefined. Once on paper (or the computer), it lets you see what you were thinking or feeling. If it isn’t quite right, you revise until your inner voice has spoken.
I end this post how I began it: Words are powerful. They entertain, inform, and persuade. Whether written or spoken, words communicate. Something.
Sanoviv Medical Institute is situated on the Baja Peninsula in Rosarito, Mexico. It’s built on a cliff looking out at the Pacific Ocean. Every day seems sunny. A lulling symphony of rolling and crashing waves repeats itself over and over. It’s a small hospital that specializes in functional medicine and both integrative and alternative treatments. Many guests visit for a health retreat. A smaller group of guests are patients with more serious health conditions. Research there focuses on how immunity can be supported at the cellular level in fighting disease and optimizing one’s best health. The physical, mind, and spirit are all important components of a healthy individual.
I left Wisconsin for Sanoviv almost as soon as my school year ended in 2016. My goals included strengthening my immunity, detoxing my body, and learning more successful ways to deal with stress. I was open to hearing what they recommended in terms of treating cancer. My oncologist at home was curious and doubted anything would interfere with my current protocol. I wouldn’t be missing any treatments at home by going. Neuropathy had taken a toll on my poor feet. I was also suffering from painful hand-foot syndrome. Of particular interest to me were the options for treating disease from a cellular level after disease had already happened. I signed up for a three-week cancer support program. If nothing else, I was off to Mexico in an idyllic setting and getting away from my life at home. It was even better if my health improved.
There are many moments from that trip etched away both in my memories and in a book that exists in a forever state of revision. I met people from as far away as Nigeria, Australia, and China, and as close to home as Chicago. My days were scheduled from 6 AM to about 7 PM. Some of it was not pleasant, but many parts of it were filled with beauty, purpose, and deep lessons. What I want to share briefly are my memories of the pelicans.
Pelicans flew along the coastline daily. I had never held any affection for these birds. I thought them big, ugly, and dirty looking. If a bird could be fishy, pelicans were fishy as well. My opinion transformed at Sanoviv watching these strong and graceful birds. I admired how they would pass by in single file while floating on an air current. It was like each bird was connected to another with an invisible string. They reminded me of bikers drafting behind a lead bike so as to block the wind and use less energy, an idea which bikers got from birds no less. At other times the pelicans arranged themselves in groups of four like in fighter jet formation. Wings tucked in for increased speed, yet they still managed to stay in unison with each other. These birds had an unspoken quiet beauty no matter how I saw them.
I had a very special pelican sighting on my last full day. I was sitting up in a special care area receiving IVs, looking out at the ocean in a bit of a daze, lost in thought. Far out on the hazy horizon, I saw a somewhat shapeless form. I wondered if they were pelicans, but they were too far away. Whatever it was resembled the v-shaped way a child draws birds flying in pictures. As the shapeless form drew closer, it moved off to the left and changed shaped, now reminding me more of a swarm of bees. From where I sat, I temporarily lost sight of the changing shape and figured that was the end of it.
But it was not. The shape was a small group of about four or five pelicans who were just hugging the coastline. Soon enough, they came back into view and flew by my window in a single file in one long, continuous silent flow. It was as if the pelicans were saying goodbye and purposely saluting me with their waving wings. It was a beautiful and peaceful moment that I will never forget.
Here is one of those perfect times where everything fits together magically. In the animal spirit world, pelicans symbolize regeneration and resourcefulness. I was at Sanoviv to heal and re-energize. The pelican population had dwindled in the past but presently has bounced back. Pelicans also represent resilience and determination. My spirit is filled with this same resilience and determination. My mindset is of one determined path just like the single line of the pelicans’ flight. A greater force was absolutely at work in bringing pelicans to me day after day after day. Signs are always there. I don’t believe it’s all a coincidence.
I didn’t get all the answers I wanted at Sanoviv. I arrived home feeling healthier than I had in a long time. My energy was better, my cholesterol was lower, and I felt happy. New scans were scheduled at home. These showed that returning to a more traditional form of chemotherapy was in my best interests. I would have had the same results if my scans had been scheduled before I went to Mexico. It’s interesting that one of the things I’m currently receiving today is what they suggested as my best option almost three years ago. The drug was not being used in the U.S. in exactly the same capacity as in Mexico, so I got a big fat NO from my oncologist at home. It was an FDA thing. Now it’s FDA approved.
I quickly made decisions and turned my life upside-down once more. Nothing was how I wanted it. Very little seemed the same. Life looks very different to me now. I have been resourceful, resilient, and determined, just like the pelican. Where everything isn’t perfect, I am still here. I am finding a way.
Lessons of resourcefulness, resilience, and determination are important for all of us. We all have stories where life hasn’t turned out as we planned. Many events are outside our control. We almost always think we have more control over events than we actually do. How we respond when life becomes hard is important. There is always a choice to respond positively or negatively. We all have opportunities to adapt, regroup, and come back to either try again or go in a new direction. We rest and give it another go, approaching challenges from new angles and perspectives. We all have more grit, strength, and determination than we think we do.
We are an awful lot like pelicans.
Many times we glide with grace.
Other times we need to be in fighter jet formation.
When have you needed to depend on resourcefulness, resilience, and determination?
Sixty is the new forty. Eighty is the new sixty. Cocktails infused with mushrooms are said to be all the rage. Small weekend trips may replace bigger vacations. I’ve heard iTunes is out. Everywhere I turn, I seem to hear about a new trend or way of thinking.
Here is one of my own: Exercise is the new sugar.
This may not be new knowledge for many, but it is for me. I have said before that I have sweet teeth instead of just one sweet tooth. I will always love sugar. I am trying to love it less these days. I would love it if I could crave exercise like I crave desserts. It works for a while and then my love affair with sugar returns. All I can do is to keep trying. This week I felt more successful in eliminating some of the refined sugar in my world.
Every day is an opportunity for a fresh start.
Exercise feeds us better than sugar for many reasons.
Exercise and Cognitive Benefits
Exercise can give you the same effects that sugar does in terms of a quick energy boost, only with exercise the effects are long-lasting and healthy. For example, exercise improves cognitive functioning. A person’s focus is sharper due to boosted energy caused by higher endorphin levels. Exercise also improves memory. Sugar does the opposite by increasing glucose levels that slow cognitive functioning. Have you ever noticed that your brain works better after exercise and the opposite is true with too much sugar?
Exercise and Endorphin Levels
There’s more about to say about those endorphin levels. Exercise increases endorphin levels. I’ve heard that your body craves exercise and movement. When your body moves a lot, it releases chemicals like endorphins, dopamine, and serotonin as a reward for your efforts. The result is you feel fantastic and have loads of energy. Sugar makes you feel good for a few moments but has addictive qualities that keep you craving it without any positive rewards. It’s a vicious cycle of falling levels of blood sugar that you need to literally keep feeding more sugar because your body feels lousy if it doesn’t get its sugar fix. In the long run (or even just a solid walk), exercise will make a person feel happier.
Exercise Combats Depression and Anxiety
Reduced depression and anxiety is another benefit of regular exercise. Both high-intensity aerobic exercise and low-intensity exercise like yoga have been found to reduce depression and anxiety.
Sugar also affects mood, but much differently than exercise. It has been correlated to higher levels of tension, depression, and anxiety. Personally, it’s so much easier to reach for cookies when I’m upset or sad than to go for a walk or work out. The cookie is instant gratification. I feel comforted for a few minutes. Working out takes longer for feeling better to kick in, but I feel like I’ve accomplished something good for myself when I’m done and feel more positive.
Exercise Lowers Disease Risk
Exercise decreases the risk of heart disease, diabetes, obesity, and certain types of cancers. It increases your chances of living longer. Of course it does! Sugar is associated with higher risks of health problems and diseases. There are many studies proving or denying sugar’s role in cancer formation or sugar fueling cancer. One seemingly reputable study seems to disprove another that seems as equally reputable. I’m not going to change anyone’s mind on what you already believe. I will, however, provide links to two sources where I often find research I tend to trust. Check out these articles at WebMD and the Mayo Clinic on sugar and cancer.
Is there a link? My opinion is a firm maybe. For me, I believe I’d be healthier if I consumed less sugar.
So Many Benefits
Exercise does a body good. It increases energy levels. Exercise is good for muscle and bones. Weight lifting is especially good for muscles and bones. It’s a must do as people age and lose muscle mass. As early as age 30, a person can lose 5% of muscle mass every ten years. Muscle atrophy happens fast for cancer patients because of decreased levels or lack of physical activity. It takes time to rebuild lost muscle mass.
Exercise can help with weight loss. Maintaining a healthy body weight is important at any age. Unfortunately, metabolism slows as a person ages, and regular exercise helps in those efforts to keep movement and activity a priority. Someone with cancer doesn’t need to do much to gain or lose weight. I’ve both put on weight and lost weight while maintaining the same exercise routine throughout many different cancer treatments. It’s been very frustrating to gain weight when I continued to work out, but I had the peace of mind that I was doing what I could to stay strong whatever number stared up at me from the bathroom scale. Exercise will change the way your body looks on the outside and the inside. Illness is harder to take hold in a healthy inner environment.
Sugar is good for making fat, fat, fat. Your liver makes and stores glucose depending on your body needs. Excess sugars that don’t get converted become fat. Too much refined sugar and high fructose corn syrup can attribute to liver disease. High fructose corn syrup is an unnatural sweetener made from cornstarch and found as the main ingredient in many sweet treats and foods. Foods high in sugar attribute to weight gain. That’s nothing new. I find that if I take the time the read the ingredient label listed on some of the sweets I crave before eating them that I get disgusted and can walk away. It’s a good hack.
Here is where I am: If sixty truly is the new forty, my chronological age suggests I should feel like I’m thirty. Newsflash – I don’t. I feel much older than I actually am due to what my body has endured. Cocktails with mushrooms are out for me because I cut out alcohol years before diagnosis. Alcohol ages a person. I also was just getting the hang of iTunes. I hope I can figure out whatever is next. I like the idea of weekend trips. I’m all in for those.
Exercise needs to be my new sugar.
Someone please remind me I believe this the next time I start to go a little crazy and feed my sugar cravings.
Living with cancer has given me the opportunity to spend more time reading for enjoyment. It is a welcomed escape. I recently read one of Brené Brown’s books, Braving the Wilderness. In today’s post, I explore this book’s themes from three different lenses.
Lens One: Braving the Wilderness Brené Style
This lens is a basic introduction to the book’s main message. Brené Brown explains that being brave involves being true to yourself. Being brave means bringing life to your story. You are the only one who can do it.
She says you aren’t going to please everyone. Inevitably, it means you can’t be brave and never disappoint anyone. So true.
If you seek the constant approval of others and people pleasing is more important than your own inner happiness, you are not being brave.
There will be criticism with braveness. There will be LOTS of criticism.
There will be great moments of uncertainty because you are standing alone.
There will be vulnerability as you discover all your truths and how you are discovering exactly how you belong.
These sound terrifying. Going through life not knowing yourself is more terrifying. Braving the wilderness means you stand firm when you face the wind and disapproval of others. When you know yourself, you have the courage to stand firm in your beliefs because you know who you are.
To truly belong, you only need to belong to yourself.
That’s the biggest take away for me in the whole book. In a world where belongingness is sought after in almost every interaction and relationship, we all lose sight that the most valuable relationship we have is the one we have with ourselves. The interactions that matter most are the ones directed at how we treat ourselves.
She writes that “true belonging doesn’t require you to change who you are, it requires you to be who you are.”
Belonging is intertwined with I AM.
Lens Two: Braving the Wilderness with Cancer
My opinion and personal interpretation take over with this lens.
Having cancer is a wilderness of its own. Truly belonging to yourself and blending that wilderness with a cancer wilderness is challenging. To own both wildernesses is overwhelming.
I believe if Brené Brown were to speak directly to me, she would say to lean in fully to the loneliness and discomfort of cancer. She would emphasize the need to become vulnerable with it. The personal connection with it would change how I feel about it. At least I think that’s what she’d say.
I also think I’ve had plenty of loneliness, discomfort, and enough of a personal connection with cancer already.
Brené Brown writes a lot about boundaries. The firmer the boundaries, the more respected they will be. It is not okay to be taken advantage of and trampled upon physically or emotionally. You can’t belong to yourself if you are crushed.
Cancer can crush a person as much as someone else can. Being bald makes you look and feel less feminine. Surgeries do the same and you’re left feeling “less than.” Others often confirm it. If you are flat, then you somehow have lost your womanhood. Perceptions around going flat are slowly changing. Treatments take all the oomph out you so there isn’t much energy left for you to object to cancer defining you. Medical labels, side effects, perceptions, and an evolving normal keep shifting. It’s easy for cancer to define someone. It’s much harder to claim belongingness.
Suddenly, you are not you anymore, but the person with cancer. Everyone has a story to share with you because that’s how they attempt to connect with you and now identify with you. It’s important to set boundaries for how you want to be treated.
Firm boundaries support trust. When others respect boundaries, it is safer to trust them. Trust has caused me an ocean of hurt. A lot has become clearer to me in the last few years.
To me, living with cancer and learning to trust more means:
I share what I want about my health and expect my privacy to be respected.
I do not have to explain or justify my feelings, nor do I need to provide a reason so others understand.
I can’t trust a person with the big stuff if someone has betrayed that trust with smaller stuff.
I need to feel physically and emotionally safe in order to feel connected to someone.
Strong boundaries enable a person to have more empathy for others. Self-care comes first. Then you know what you can do and not do for others. I still identify as a helper. Taking care of myself first lets me know what time and energy I have available for others.
Living well demands I brave it – it being life – and I’m braving it fiercely these days. The older I get, the more at home I feel in my own skin. I’ve known for some time that my happiness depends on my braving life. I am comfortable with most of the decisions I make. Being brave is both frightening and peaceful at the same time. The uncertainty and vulnerability show up as frightening, but then the acceptance of those parts of my life oddly brings an element of peace.
Lens Three: Braving Well Together
This sounds like an oxymoron if braving the wilderness involves only needing to belong to ourselves and having the courage to stand alone yet firmly in our beliefs and values. The way I see it, there is still room for the support of others who are also being brave. Picture a wilderness scene. I can be standing in my wilderness next to a beautiful mountain lake holding a sign that proclaims my beliefs. Another person can be standing a few feet away near a magnificent tree with a sign that reads entirely different. Part of my wilderness may be accepting and trusting others. This holds challenges for me, but I need to be vulnerable enough to slowly test those waters. The other person may be working on keeping a few more personal thoughts and the confidences of others private. We can give each other the acknowledging head nod to show our support while still recognizing the work is an individual inner process.
The other way I believe we can be brave together is that it’s when we feel alone and are brave that someone else comes along and gives voice that they feel exactly the same way. We may think we are alone, but we are not. It’s very possible that someone was feeling the same way and was beyond grateful to cross paths with someone else giving voice and standing his/her ground in a way they needed. When we are brave on our own, social connections can be found. It’s part of finding your tribe.
Vulnerability has always been tough for me. Honestly, I haven’t always liked Brené Brown’s work. I stopped reading her first book years earlier because I didn’t like what she had to say and I found her too repetitive. Looking back, I wasn’t ready to do some of the work I needed to do.
I still have work to do. LOTS. There is so much I don’t have figured out. I’ve figured out this much: I’ve become more comfortable braving the wilderness.
Have you read any of Brené Brown’s books? What stands out to you?
Everyone has core themes – themes that make you who you are. Identifying what these are as an individual is a huge part in understanding your identity. Core themes become part of a healing plan because when you know who you are, you know your strengths. Leaning into your strengths can lead to faster healing.
We should always align what we do with our core beliefs. It’s part of being well and being happy. We all need to live our truths and core values.
I hadn’t thought much about my themes other than I was a teacher, a friend, a daughter, and that kindness was really important to me until I was diagnosed in 2012. With a lot more time on my hands to ponder my purpose, I could really expand on themes for my life. Then I could see how well these matched with my core beliefs. If there was a natural flow, then I knew that I was headed in the right direction. If something felt forced or there was resistance, something was out of line and either didn’t belong or needed a bigger adjustment.
Here are my core themes that I am reaffirming and reminding myself of as I live with cancer:
I am important.
My needs are important and need to be put first. I don’t come last. Yes, helping others is part of my purpose, but I need to make myself a priority. It feels really good when I snuggle in a blanket and sit by the fire with a book. I enjoy putting something else aside so I can go for a nature walk. Taking a break to drink a cool glass of refreshing green juice tastes heavenly. I have rediscovered the joys of reading and writing. I have gifts to share through teaching, writing, and journaling. My work is valuable.
I also need to choose activities and people who are calming, supportive, and fun. I am too important to put myself in harmful, negative, and stressful environments. There is no need to apologize or explain. No drama for me. I lived as a compromiser for too long to avoid arguments. Honestly, I thought it was easier that way. The problem was that the compromises, or all out giving in, was not calming, supportive to me, or enjoyable. It isn’t selfish to put yourself first. It’s self-care.
My life still has great purpose. When I taught, I made a difference day-by-day, child-by-child. Now, I approach new endeavors with that same driven ambition I had with teaching, but also with more balance since my schedule is highly flexible. What I have to say is important to share.
I am strong.
Another core theme is that I am strong and immensely powerful. No, I am not overly physically strong, but I’m getting stronger. I could never climb the rope in gym class or do a decent pull-up. Those are claims to fame that still elude me. But I have enough inner strength to match a hundred rope climbs and thousands of pull-ups. That’s right, thousands. I had the power to get a classroom singing to original lyrics and choreographed movements about respect for an assembly, AND I was able to get them to think it was cool because it was cool. I have the power to advocate for my best health and make it the best it can be.
I will exercise and eat well to feel better and give my body what I need to be healthy. Health doesn’t happen with just one or the other. Eventually, poor eating choices catch up with a person even if he or she is fit. Great eating choices don’t do a lot if someone never moves or exercises. There also is an emotional payout to exercising and eating well. I get my thirty-minute minimum every day.
I’ve had to dig my heels in a lot more over the past seven years, particularly in terms of what I will accept in terms of how I’m treated. As examples, I was not happy with past phone conversations and what I considered bullying from a long-term disability company that did everything in its power but help me. I spoke up, but it’s a long story and a subject for another post. I’ve also called the patient relations department a few times where I receive treatment over the repeated delays and long waits patients have in receiving treatments because of financial decisions rather than decisions focused on patient care. Here again, it’s a subject for another post. The take away is I’ve become strong enough to speak up for myself when my needs aren’t being met or someone has been rude.
I connect with nature.
I need nature. I love healing green spaces with lots of trees. I absorb the energy. Two summers ago on a short vacation, I observed this first hand. I had traveled with my sister to Door County on Wisconsin’s peninsula. I usually am ready sooner than she is in the morning. I would get a little droopy and sluggish waiting for her before we started our day. My energy level completely changed by simply driving through one of the state parks as a detour connecting one town to the next. The woods provided a combination of nature, peace, energy, healing, and spirit for me all in one. My mood shifted for the better.
I experience the same feeling wash over me whenever I drive into the UW- Arboretum. My mind unwinds as I meander along the paths. It’s the green, all the trees, and being in a place where any humans I meet are there for the same thing as me.
Peace and kindness are recurring themes.
I am all about peace and kindness. In 2013, I finally started a peace journal, made up of Bible passages, ideas from other religions on peace, poetry lines, famous quotes, songs, and anything about peace that resonated with me. When I quiet the house and everything around me, everything narrows down to particular words and thoughts. Then everything opens up big time. It’s pure meditation and oxytocin in action. My spirit soars and I feel like I leave or that I’m lost in the moment. Maybe I’m actually more present than ever. I believe a lot of people pray for peace, which is more important now than ever in today’s world. I read a distinction someone made not too long ago that if people prayed, meditated, or just thought (whatever you want to call it) to feel peace rather than for peace, it would be possible to achieve lasting peace between people in the world. We need to feel it within first and push it outward.
I am a teacher and a learner.
A core theme as a teacher and learner has been central to my life. I loved elementary school. I did well. Reading and immersing myself in a world of story couldn’t be beat. From as long as I can remember, I always loved learning and sharing what I learned. Whether a student or teacher, school was a place where I felt safe, successful, and supported. It’s what I wanted to give my students. Teaching always just fit who I was. I can’t explain it any other way. Sometimes I entertain thoughts of returning to school for courses in writing, history, archaeology, and literature just for fun. For now, I enjoy exploring what interests me on my own.
It is no coincidence that in work with my fitness coach I am focused on a lot of work to strengthen my physical core. I know what is at the center of my personal core. I have rock-solid personal core themes and know who I am. In this sense, I am very well aligned.
Happiness involves living in accordance with your core themes. What you identify at your core should be those things that bring you happiness, enjoyment, and peace. Associated words for these feelings may be energetic, hopeful, valued, proud, loving, joyful, and thankful. You may reconsider your actions if you associate feelings of guilt, boredom, frustration, anxiety, helplessness, discouragement, and anger with them. It seems obvious, yet many people stick with actions or beliefs that go against their core out of habit and because making a change is hard work. Make little changes. In a few months time, a small shift has happened where you feel more like you.
This type of question fascinates me. It’s a wonderful opportunity for self-reflection and discovery. The answer can change over time as different significant events are experienced, and even as major interests come and go. When I first started thinking about storytelling objects, the number three popped into my mind. Three objects was a good number. Three objects soon became extremely limiting. Then I tried to compartmentalize my life into three sections: past, present, and future. I could have several objects within each section. The future section posed the biggest problem. A crystal ball is not one of my objects. Time as some sort of construct to organize my story helps, but something is still missing here, too. Finally, I fell back on simple self-reflection to identify objects to represent stories that collectively tell a little bit of the story of my life.
Object: Lisa and the Grompet (book)
There have been countless times where I’ve unearthed a memory and thought, “Ah-ha, so this is where it started.” I have found letters I wrote to my mom while I lived in Scotland declaring how I might as well go places on my own so I could see as much as I could and do what I wanted. I went all over on my own and thought perhaps this was where my independent streak was born. Being in Scotland for a year, however, was already a story of independence.
But it goes back further. Both my parents always valued education as a way to be independent and for me to stand on my own. Good call, parents. I place a high value on education for many reasons. It continues to give me a lot of happiness. It gave me wonderful years in a career I loved. Being independent enough to support yourself and get to do what you love can’t be matched.
But this story still goes back even further, quite a bit further. I remember my dad dropping me off for Sunday school for the first time. We were early and no one else was there. A little boy showed up. My dad wanted to stick around to make sure I was okay, but I shooed him off, telling him I was just fine and had a new friend. He reluctantly left.
For a long time, I thought this was the first memory of me asserting an independent spirit, but no, I can trace it back further still. As a young child, there was this book I loved to check out repeatedly at the public library – Lisa and the Grompet. It was about a little girl Lisa who was bossed around by everyone in her family.
She knew what she needed to do. No one had to keep reminding her. One afternoon she discovered a little grompet creature outside who needed someone to take care of it and tell it what was what. Hmmm . . . I felt a lot like Lisa and never liked being told what I should do. Yes, this I think is where my story of independence subconsciously took root. Maybe I was born knowing I was okay on my own. That would backtrack the story even further. Who knows? I need people like we all do. What I am saying is this book had an effect on me and there has been an identifiable pattern that turns up at other times in my life.
Photos are an easy choice. I love going through albums and remembering favorite moments with my family. They are a collective timeline of my life, so it’s really not possible to choose just one. Together they tell my story. There are photos of birthdays, holidays, vacations, achievements, picnics, days up at my grandma’s farm, pets, and many special occasions. Every year there was a classic photo of the first day of school. Family experiences and values shape so much of who we become. Looking back at those photos helps me remember those times. Photos of family (and friends who are family) are good storytellers. Perhaps my enjoyment of past photos even points to some of my present interests in photography. Important ideas keep showing up.
Story: Teaching and Writing
I’ve written over twenty years of lesson plans with pencils. Hundreds of kids have used thousands of pencils to demonstrate many levels of learning and understanding. They have borrowed and kept many. Too many. I should have taken out stock in a pencil company. I still prefer a yellow Ticonderoga and get a bit of a rush when I begin to use a newly sharpened pencil with a fresh eraser. I’ve filled diaries and journals as a child and adult. These are great time capsules of years, trips, and things I thought terribly important at the time that are now preserved. Feelings that I never wanted to share anywhere else I could capture with words just for me so I’d remember. Many writing endeavors have been written on my laptop, yet that image of a pencil is a perfect representation for the plans, creativity, and story involved in each of them. Pencils create powerful stories. Pencils don’t have the story, but they are the way the story oozes out, word by word, until something complete and amazing is created.
I’m not sure if it’s true or not, but I’ve heard a single pencil can produce 45,000 words. I don’t doubt that one pencil can create thousands of words. Knowing an intangible quantity awaits inside makes pencils one of the truly powerful and magical objects in the world.
This story sucks.
I remember calling my mom after I had gotten my phone call with the news. She was upset. Then I headed over to her house to show her I really was okay.
I remember the day I told my students I wouldn’t be finishing the rest of the year. I explained I had been seeing a lot of doctors and they had found something wrong with some of my cells that weren’t working the right way. The name for it was cancer. My doctors had a really good plan for me but it meant I had to be away from them. That isn’t exactly where this story started, but it’s where it became common knowledge to a big part of my world beyond my immediate family and a few close friends.
Now, it continues. I marked my 100th treatment at the end of February. I don’t really have the words to express how that number makes me feel. A lot of conflicting emotions overlap in a messy jumble. It’s a juxtaposition of toxicity and life. I’ll keep on keeping on.
I really hate including this as part of my life’s story.
I’ve argued with myself trying to decide whether to include this part or not.
Me: Maybe I shouldn’t.
Also Me: How could I not?
Me: Don’t give in to it as a factor in your life.
Also Me: Too bad, I really don’t have a lot of moments where I feel truly away from it.
Both of Us: Cancer sucks.
I have worked so hard not to let it define me or become part of my identity. Appointments, treatments, side effects, and other related choices have changed the way I live. I needed to retire. Teaching defined me perhaps more than it should have, but I feel that is something almost innate in my being.
When I decided to blog, I knew sharing about how I’m trying to live well while living with cancer would connect cancer to my life more than I wanted. It’s not a story I wanted to have, but it’s part of my story nonetheless. The image of the pencil also blurs into this story. The teaching story also overlaps. Once again, important ideas keep showing up. I can choose how I tell it by the way I live which is why I’ve chosen to focus on wellness. I have a lot of wellness in me. I want people to see that and see me as me.
Story: Rejuvenation and Future
Paths surrounded by trees are some of my favorite places. Trees re-energize me.
I am relaxed spending time in nature. From out of nowhere, solutions show up for problems. Something creative happens. Inspiring ideas come to me, whispered by the breeze. The fresh air makes me feel fantastic. Depending where I am, I see turkeys, deer, or cranes. I can’t always see where my path leads and that’s okay. Sometimes I know where I’m going; sometimes I don’t. I’m going somewhere and I choose to believe it’s good.
Many objects make up the story of our lives. Books, photographs, pencils, cells, and paths make up part of my story. These may not be the best objects to choose, but they are what I’ve chosen here. For now, there are many other books to read and photos to take. I have much to write whether with pencils, pens, markers, or keyboards. My story is still being written. Creating an environment where healthy cells thrive and abnormal ones don’t is an important focus. I love being in nature walking familiar paths or exploring new ones.
Ultimately, my story is one where I find a way. Always.
What objects come to mind that could tell part of the story of your life?
What special objects hold important memories for you?