Finding A Way – Living with Cancer while Living Well – officially is one year old. I am amazed at how much I’ve written and have grown as a writer. It is a good time to review the year and make goals for moving forward.
In the beginning, I wrote about what I searched for in order to be my best. I sought to find ways to increase my strength and stamina. I wanted to stay motivated and never give up my belief that I am healthy. I planned to lead and live by example. I’ve always searched for purpose and meaning in my life.
I am interested in finding joy, positivity, strength, and hope. Finding A Way involves living with cancer while living well. I wanted to achieve this for myself but also hoped that by writing some of my thoughts and story that I would be able to help others find their way. My intention has always been that anyone reading could come away with something to apply to his or her life whether that person had cancer or not.
Strength and hope are two themes I’ve spent a lot of time on. I suspect they will continue to be common themes for posts. Other themes I plan to explore more deeply are identity, fear, trust, perspectives, and change. I enjoy exploring topics through story, metaphors, and when using narrative lends itself to showing these concepts in action. Using these elements provide a visual hook for me and tends to solidify meaning. I remember things better when I have a story attached or have made a personal connection.
Health and exercise have been and will continue to be repetitive threads in my posts.
Frustrations (and perhaps positive experiences) of my interactions with the medical world as I navigate it from my position as a patient may become more common.
I plan to continue posting positive quotes on Wednesdays to add a bright spot into people’s weeks.
My most viewed post was Stage V and Kardashian Power. I have never watched the reality show or follow them in the news. My intention to live and lead by example and change perceptions, definitions, and conversations around metastatic cancer is still a main goal of mine. I know what the statistics say regarding metastatic breast cancer but I still choose to live with a mindset that has moved past the confining medical constraints and live in expectation with my own. I continue to be surprised at what appeals to people. I find it absolutely hysterical that my most liked post was Exercise and Nutrition. At last count, it had 31 likes. I’m so not an expert.
I don’t feel like I’m an expert in anything. I just write about my feelings and how I’m trying to live well with cancer.
I’ve looked over my posts and have identified some of my favorites. I have many! These are listed below and you may click on any of them if you’d like to look back and reminisce. If you are a new reader, I hope they provide insight into what I write about, how I think, and that you enjoy them. I may repost some of these that I want to highlight again. They are still relevant. There is no need to reinvent the wheel if the wheel I’ve created still rolls well.
I plan to continue to write about my life. I invite you to follow along as a subscriber on WordPress by clicking on the gray or blue “Follow” button, or become an email subscriber and receive an email notification whenever I post something new. Please also remember to like a post if you enjoyed it. Comments are always welcomed. I encourage you to leave one. The prompts I provide at the end of some posts are only a guide.
I appreciate you all as readers and taking the time to read my words. Your emotional support means a lot to me. I wish each of you the very best on your search to find a way, as I keep searching for mine.
Find a way.
- What have been favorite posts you’ve enjoyed as a reader?
- What topics or themes would you like to read about in the future?
You can’t unring a bell.
Receiving a cancer diagnosis is very much the same. You can’t go back to the way things were even after surgeries, radiation, and treatment are finished, even if you are assured the cancer is gone. The fact remains that you had it. Everything you went through has inherently changed you in some way.
Others may not see it. Physical appearance doesn’t change drastically for many. Family and friends may tell you that you look the same to them. You are still the same you. It’s intended to be reassuring. There is some truth there. (I find it annoying.) To say you look the same on the outside and imply that you are the same on the inside is what some people mean. That is not fair, nor their call. I know of one marriage that ended because a friend’s husband didn’t understand his wife was still dealing with a lot of difficult emotions. She told him, but she looked “just fine” and everything was “done” and needed to get back to “normal” so he couldn’t understand why everything else wasn’t therefore fine by default. Certainly, there could have been other factors to this marriage ending. I know of another marriage that ended because the husband understood there were changes on the inside as well as on the outside, and he wasn’t attracted to the outside any more. What a guy! There could have been other reasons behind this marriage ending, too, but it seems like cancer became the impetus.
Then again others may see it all too well. Somehow a person who has suffered and is somehow different in a good way may be too much for others to accept. They would be very happy to go back to how things used to be in order to feed what they need. This is where disapproval, insults, and being told that YOU have done something wrong come into play as attempts to keep you in a place that works for them. These relationships should end. There is no room for toxic people in a life that has seen its share of toxicity. I personally deal with toxic drugs almost every week in my efforts to stay well. I can’t deal with toxic people or negativity. Whether finished with treatment, currently in treatment, or in ongoing treatment, do not choose to tolerate toxic negativity from any person. Enough. January is a good time to start fresh.
Maybe you feel not much has changed on the outside or the inside. My position is inside changes took place because you grew from what you experienced. Change accompanies growth. Those who don’t like change don’t have as much opportunity for growth. I used to be one of these people and it’s still hard for me. Change is uncertain and often I don’t understand why some things need to change. I’m trying to understand that changes are there to teach me something and I am working to be open to changes. Changes can be new beginnings. January is a good time for these, too. New beginnings after diagnosis and treatment may be a new job, home, or relationship. Maybe you look at life differently, and have reexamined your belief systems or time commitments.
One constant remains: You can never not have had cancer once you’ve had it. That bell was rung.
I’m tired of its clanging and repetition.
I believe you can ring other bells louder so the sounds drown out other bells.
Ring the bell of resiliency.
We are all capable of more than we know. Resilience is another one of those intangible factors that makes people rise up time and time again after tough times. Yes, problems are inevitable. How a person deals with them is what matters. Being resilient means you find a way to continue to thrive even when there are problems. Taking care of yourself is part of being resilient. Physical and emotional self-care are non-negotiable. Exercise, eat well, meditate, find joy. When your outer and inner self are strong, it means another layer of resolve has been added to resiliency that problems cannot break through, whether the problems present themselves as people, situations, or things.
Ring the bell of joy.
Do more of what you love. Have that cookie. Take a day off and do something fun, frivolous, and completely fantastic. No need to justify, or explain, or defend it. For me, I choose to walk trails and be among trees. I sit on my sun porch and listen to birds. I laugh at movies I’ve seen too many times. I call friends or get together with them. I enjoy exercising (usually) and enjoy it even more when I’m done and reaping the benefits.
Have another cookie.
Yes, I know I mentioned that one twice.
Ring the bell of gratitude.
I believe there is a richness and depth in appreciation that gives life both more purpose and meaning. That thing where you think of five things to be grateful for at the end of each day works. Feeling gratitude is easier when you feel healthy. What about when you aren’t feeling well at all? Knowing myself as I do, I know my emotional and physical health does impact what I’m capable of feeling in the gratitude realm. The other night I had one of these moments. It was about twenty-four hours post treatment and I was flushed and hot from the neck up while the rest of me had the chills. I was low energy and felt a little sick. But I knew if I could get to bed and fall asleep that it would pass and tomorrow would be better. That was about all the gratitude I could muster. My point is it was enough. We are human and do the best we can on any given day. That is the space we all share where health status doesn’t matter.
Ring the bell of knowing yourself.
Take whatever time you need. It isn’t selfish to take time for yourself and know what you think. It isn’t selfish to do what is best for you. Live your beliefs. Others don’t have to like them or agree with them. You do. I thought I knew myself pretty darn well before the cancer diagnosis, but it sure caused me to be more deliberate with how I live. I am more sure of myself now than ever, even though I continue to be a magnificent work in progress.
Ring the bell of standing strong.
You may have to keep ringing a lot of bells longer than you had planned until the unwanted bells stop ringing. Keep at it. You’re stronger than naysayers. Statistics do not know you. You’re more than a number. I get tired of bell ringing, but remember that the sounds create important tones and vibrations. These bells make beautiful music.
Nope, you can’t unring a bell. You can’t let anyone else ring it for you either. Ring all the bells you need to ring until you hear a song fit for a carillon tower. Your song.
What bells would you like to stop ringing in the new year?
What bells would you like to hear ring more?
Superheroes are part of current popular culture. Super human strength, agility, and speed quicker than lightning save cities or planets. Right and might both outwit and outlast villains every time. I like to think of hope as its own superpower. It is its own light in the dark night. Hope calms the inner storm. Hope saves. There are days it takes a beating, but it is never snuffed out. It always resurfaces stronger and brighter. It is also transferable from one person to another which makes it even more powerful. I wish hope could be embodied in some type of physical form where we could call out for it and see it leaping over obstacles in a single bound and knocking out the bad guy. It sure would make life easier. We must do our best to take on that persona ourselves. Superheroes are good examples of what it means to adopt a hopeful lifestyle.
When we live hopefully, we become those superheroes.
Hope by definition doesn’t make you feel doomed. It provides strength and wipes out fear. Hope moves forward. Hope is a Stage V quality. Throw resiliency and toughness in there as Stage V qualities as well. One on its own creates a reaction. The reaction is greater when several of these qualities are combined. Stage V is also a superpower worthy to make a stand against villainous cancer.
Adam Sicinski is a life coach, founder of IQ Matrix in 2009, and has developed over 350 self-growth mind maps. I honestly can’t gush enough about these mind maps. One of his points in “How To Nurture Hope When Life Starts Getting Really Tough” is that hope can’t come and go from a person’s life as the need arises for it. Instead, hope is a lifestyle. Hope becomes an integral part of each day. It requires trust and faith in yourself that you can get through tough times and follow through with your actions and plans. He writes when you nurture hope you lessen doubt, anxiety, and stress which alleviates some of the uncertainty while facing these emotions. In turn, your levels of belief rise and you can act in a more positive way despite whatever trouble you face.
Pessimistic thoughts must give way to a sense of certainty. Hope becomes more proactive this way rather than a passive act. More of Adam Sicinski’s ideas follow as to what it means to be a hopeful person.
Living hopefully means . . .
- You are grateful for the life you have. Even though you are living with gratitude, it does not limit you from seeking out a better life.
- You want to make things better and look for ways to make your life better. Actions and opportunities pave the way step by step.
- You will always do your best to make the most of every situation.
- Every experience has some value. You remain hopeful that things will turn out in your favor.
- No matter what happens, you maintain a positive outlook.
- Living in the now. This means that by making the most of today, you increase your chances of making the future you want a reality.
- You do more than just hope things work out. You work to make it so. Sometimes this means building on past successes and learning from what has happened. Mistakes can be helpful.
- Living generously. Giving to others often provides a better understanding about your own personal struggles while allowing you to grow toward where you want to be.
- Looking for opportunities where others can help. You can’t do it all on your own.
- Ridding yourself of worry and regret. It breeds anxiety, stress, and hopeless thoughts.
- Surround yourself with positive people. These are not perfect people, but people with a sense of purpose who work through challenges as cheerfully as possible with attitudes that keep them moving forward.
This last idea is really important for me because positive people seem to have many of the other qualities needed for living hopefully already present. We gravitate toward one another and conversations about positivity and hope unfold naturally. I need to surround myself with these people as someone living with cancer. I also need to continue being the person living hopefully.
I also like that Sicinski doesn’t say that nurturing hope means nothing ever goes wrong. A perfect life isn’t realistic. Each of us has a choice as to how we respond to life’s challenges. When mistakes are made or unexpected circumstances are encountered, those who nurture hope will likely see these experiences as opportunities for growth. I think there are many similarities in hope as a lifestyle and being resilient.
A lifestyle that embraces hope involves gratitude, trust, positivity, happiness, and belief. Nurturing hope causes you to reflect a lot on your life and draw upon strengths and resources. These shifts in thoughts and lifestyle apply to anyone who wants to live with a mindset geared toward hope. Hope as a lifestyle also correlates positively with a Stage V lifestyle.
One of my most hopeful times of day is in the predawn of the morning. I’m still in bed, relishing that state of bliss between sleep and awake. It is quiet. In the summer, I can hear birds chirping melodically. When it’s winter, the gentle sound of the furnace is comforting. I feel refreshed and have the whole day stretching out before me. Anything can happen. I like to think about how I see my day unwinding and set a positive intention. Often I just appreciate the stillness and let myself be. Now, I understand mornings aren’t everyone’s best time, but I’m betting you can identify a time of day where you have an abundance of hopeful energy. Maybe it’s during your morning coffee or tea. Maybe you find it while out for a run. It could be much later in the day when you’re driving home from work. The point is to give yourself some time every day to be intentionally hopeful. It takes only a few moments to let gentle hopeful feelings and reminders have a positive impact.
May the coming new year offer many opportunities for living hopefully.
What are you hoping for this year? What plans have you made to help turn your hopes into something real?
Have you ever heard of a dibble?
How about a doom dibbler?
I was truly lucky to have my amazing dad in my life for 26 years.
I am equally fortunate that I carried over so many valuable memories and words of wisdom into my life today. Too many to share here, but there are a few that lend themselves effortlessly to being hopeful and resilient.
My father used many inspiring sayings that have stayed with me over the years. I don’t feel I experienced a lot of hardships growing up, but he would often fall back on the tried and true, “When the going gets tough, the tough gets going.” Apparently, this phrase is attributed to either JFK’s father or Knute Rockne. My dad would say it whenever I needed a little extra encouragement and the impossible loomed. My dad thought most things were possible. Sending the tough on its way has a lot to do with resiliency. A resilient person has the courage to bounce back and deflect tough things because he or she is tougher. Being tough and strong is the only choice. Some see this as stubbornness. I take those words as a compliment because the tough has to get going. So long, tough. You are not welcome here. Get going and be gone. My inner toughness will prevail.
My father was one of the pivotal hopeful figures in my life. He made me feel like I mattered every day. His positive outlook and upbeat attitude were repeated over and over from people who knew him at his visitation and funeral. I already knew these things, but it is so important that he spread hope to others. I believe that it’s part of his legacy. What qualities did he have that made me feel like I mattered? He was always in my corner. He spent time with me every day and sang me bedtime songs. He read to me. He loved watching me play tennis, win or lose. He drove me back and forth from home to college almost every day during my fifth year so I could live at home and save money. He drove me to job interviews and waited in the car until I was done. We had good talks. He made me laugh. He really believed I could do anything.
Another one of his key phrases was not to be a doom dibbler. JFK’s dad or Knute had nothing to do with this one. It is an original Dad concept! Really, I never thought dibble was even a real word. He had a way of mispronouncing things and getting some words wrong. He was raised in a German-speaking home so this was typical for him. I figured he had made it up, but I knew what he meant. Much to my surprise, dibble actually is a word! As a verb, it means to make a hole in the soil with a tool (from the noun called a dibble) for seeds or young plants. His background was in farming and agriculture, so now I understand doom dibbling on a whole new level.
He knew exactly what he was saying.
My dad didn’t just want me to stop whining about something and have a positive outlook.
He didn’t want me to plant that seed of doom that would grow larger and larger.
Doom dibblers get bogged down in negativity and worry. Constant emphasis on what undoubtedly will go wrong becomes toxic and central to their world. Are you thinking Debbie Downer? Womp-womp. Nothing is or ever will be right. What if the worst happens? It becomes central to their identity as a doom dibbler. Doom is quite an ugly word. Do not be a doom dibbler.
Become a hope dibbler instead. Perhaps a hope harvester better expresses the sentiment. Emphasis on the positive spreads that energy in the world. Use whatever dibble you have to plant the seed of HOPE and watch it grow. What if it all works out? Imagine all the wonderful possibilities. My dad knew a lot about hope. Yep, he definitely was a hope harvester.
My dad also had a habit of writing me notes that I’d discover tucked away in my slippers when I was home for the weekend or he’d mail them to me in college. Little stick figure sketches of himself, our dog, or Bucky Badger were included. A twenty-dollar bill was usually clipped to the notes. Little words of wisdom were also included. We were a close family who spoke regularly and saw each other every weekend. Yet, he’d still send weekly letters filled with words of hope and wisdom. Hope was a message in almost every note I saved. Usually the notes began that he hoped all was well. He was so eager to hear about school and support my studies in any way he could.
“You are such an outstanding young person. Do share with us all your accomplishments.”
Well, shucks. See what I mean about him being in my corner? These notes were my own personal cheering section. I cherish them now more than ever. Yes, I’ve kept them. His hopeful words and messages transcend time.
On one note he wrote that smooth sailing didn’t make good sailors. (I don’t know the source for this advice. It probably isn’t JFK’s dad or Knute.) He owned a recreational motorboat before he married my mother. He kept the boat after they married, but it was used infrequently. I remember playing in it when it was stored on one half of our home’s garage. I never thought of my dad as much of a sailor, but I’ve often come back to his comment about sailing.
Sailor or landlubber, the point was that hardships help us learn and grow.
In the end, they shape our character and strengthen our spirit. Hope plays a role because you land on your feet a stronger person after going through the struggles.
Another repeated theme in his weekly notes was on the value of saving money. I always thought I had been good at saving money, but maybe I’ve been good at it because of his influence with his notes. On some notes, I’d find articles attached on investing. In one note he wrote, “You’ll find a short article on the value of investing early for retirement. I know you’re young and still going to school, but it doesn’t hurt to have your ideas focused for future investment moves. Enclosed are a few dollars.”
I hope you hit the jackpot when you were given your father. I know I did, and even though he’s been gone for over twenty years, he’s never left my heart. Some of you reading this may have had the good fortune to know him. My words really can’t do him justice. Maybe my memories have made you smile with some of your own about special people you’ve known in your life. Thank you, Dad, for all the love and hope you gave me, and for everything.