These thoughts formed as I thought about what I did over summer. There were a couple momentous events that I celebrated because birthdays and related plans still happen in pandemics. Most days were quiet. There was a lot of sameness and not much to shout about. I viewed medical appointments as chances to socialize a bit. My trips to the grocery store twice a month held high excitement.
My photos visually reflect what I did last summer whether I puttered about my back yard, paused to take a photo while walking in the neighborhood, or found myself in a favorite nature setting.
I want to stay as healthy as possible so I can do the things I want. It’s been harder lately as I’ve experienced some side effects in my feet and hands that make moving not fun. I believe they will improve. I believe I have some control. Who knows if I do or not, but I like to believe I do.
Belief is powerful.
We become what we believe. Beliefs become our words and actions. Keep in mind I don’t believe I brought on a cancer diagnosis by my thoughts or actions. No blaming myself. Belief is part of my personal treatment wheelhouse. I believe I can maintain my health. Staying active is the action to match that belief.
My oncologist told me not to alter what I was doing as a means of preventing some of these uncomfortable and at time painful side effects. I’m not sure she fully understands how intense I am. I don’t look super athletic. I’m not. Yet, I push. I sweat. I make decisions I question once I’m well past the point of no return. I woke up the morning after my first cycle of Doxil and felt so good I walked four miles in the heat. I wake up extra early on the days of my treatments so I can get a good workout done before I go and spend the bulk of my day at the hospital. I exercise even on my down days. I choose easier work, but I still choose something. She repeated her advice not to limit my activities the day I went in for my second cycle.
With her guidance in mind, I’m still keeping up my activities, but I’ve taken it a little easier for several days after treatment and integrated more yoga into my routine. The chemo care sheet says not to create extra friction on hands and feet for up to a week after each treatment. I see yoga as a way to work on core strength and flexibility while also quieting my mind. Yoga can grow my inner strength in addition to my outer strength.
Usually, I don’t stick with it very long. I feel tired after thirty minutes and not incredibly successful. I would improve if I practiced poses more as part of my practice.
I never did yoga outdoors until one glorious morning. I didn’t think I’d like it. I felt too self-conscious. Heat and bugs would bother me. But I went for it and loved it.
I love that I still have new things at this point in my life.
I’ve been rising early on Sunday mornings, even earlier than on weekdays. On this particular day, the forecast was to reach the upper 80s. Hot weather is not my cup of tea. I wanted to get my workout done before it got too hot and definitely while my patio space was still in the shade.
Thoughts of the back yard I created wandered through my mind as I practiced. I admired my red bee balm knowing I was responsible for planting it. A hummingbird visited while I was out. I see them often enough due to the flowers in my garden. I always take it as a good sign when I see them. Cardinals, mourning doves, chickadees, and robins filled the air with their singing. Dew glistened in multicolored glints off the green grass. The outdoor air felt good on my skin. My senses took in my environment.
Other than myself, there were no people and no people sounds. I was alone in this piece of paradise for a few moments. I felt total oneness with my surroundings. I noticed close to a dozen different shades of green.
There was an insane level of power and peace at the same time.
I held poses much longer than I usually do in my wellness area in my basement. My commitment was to do what felt good and not commit to a set time. I did everything I wanted and practiced a little over an hour.
It was a time I could consciously focus on my breath.
Breathe in. Breathe out.
Cloud watching was included as some breath work. Lying flat on my back and staring upward was a good rest from some hip extension work. I love watching the sky. Cirrus clouds brushed the sky. I looked for animals as shapes drifted by slowly. Somewhere in my childhood was likely the last time I took the time to see the sky from this perspective. I’m looking forward to doing it again.
When I finished, I walked in the grass barefoot. It was more needed sensory work. I am someone who has always liked something on my feet. I’ve never been a barefoot kind of gal. The dew kissed grass was too much for my toes to resist. I walked slowly and each step became part of a reflective meditation.
Maybe I used my hands and feet more than I should have. Shoulding is a horrible business. I was told I could operate business as usual. So far, my feet seem to be faring better than my hands. My palms look shiny and waxy. They are a bit red in between my fingers and have peeled very minimally. I did them in a couple weeks ago wringing out water from towels when my air conditioner broke and my furnace leaked. I cleaned it up because that’s what needed to happen. In addition to the cost of a new air conditioner, it cost me my hands. Every crease where there are joints on my fingers are red, stiff, inflamed, and painful. I’ve been using a ton of lotion on my soles and palms. Days of not adding extra stress to them have helped more than anything. It took about ten days for my hands to heal so they don’t hurt. The joints still feel leathery, look different, and flare up after treatment or when I overdo it. I will continue to practice good self-care.
There are 26 places named Hope in the United States, ranging from Wisconsin to Mississippi, and from Alaska to New York. Hope is on the map in several European countries, and even farther away in Pakistan, South Africa, and New Zealand. There are a total of 50 cities throughout the world named Hope.
But you don’t have to travel to any of them in order to find hope. Likely, you would find some there if you did, because hope is everywhere. You just need to know where to look and be really good at keeping it when you find it.
Hope is plentiful. It can be found in every smile, the water, and in the air. Unfortunately, hope can also be elusive when it’s most needed. Below are ideas of some of the expected and unexpected sources where I have found it. As you read the ideas below, I encourage you to identify a strong example of each that resonates with you.
Family: These are the people who know you best and have your best interests at heart. Choose the family members that have always given that unconditional support. My grandma was always a source of comfort and support. I loved holding her wrinkled, beautiful, and amazing hand. She wouldn’t even have to say anything. Just looking at the miracle of a woman in her upper nineties who had lived a remarkable life made me feel hopeful. Memories of her words and actions still echo wisdom, warmth, humor, and hope.
Friends: I know some of my friends will be there through thick and thin. When the chips are down, true friends are the ones who show up. I can be myself even if I’m feeling tired, down, unwell, or a little grumpy. They are givers and they lift me up. We have the stupidest jokes that we still think are funny. These are the friends that keep me hopeful.
Strangers: How strange! But every once in a while you will cross paths with someone who says exactly what you need to hear at exactly the right time. Family and friends cannot always do this. These strangers come in and out of my life in a flash, but they often say or do something that has a lasting impact. Maybe it’s a tweet I read or a comment I overhear. Perhaps it is something said directly to me. It could even be a small act of random kindness.
Faith: Maybe you get hope from going to church, temple, a mosque, or some other physical building. Maybe it’s through prayer, reading scriptures, or through sharing your faith with others. Feeling a spiritual presence creates strong feelings of hope. It’s different for everyone, but I believe we all believe in something, and that something is the faith needed to lift us up when we need help standing.
Fitness: I often find my spirits are raised when I’ve gone for a walk or I’ve spent time hiking or biking. When I achieve something that I couldn’t do before, it makes me feel confident, believe in myself, and be more hopeful. I think the endorphin release that goes along with exercise not only contributes to happiness, but also hopefulness. It was an invigorating 27° F the other day and being outside walking really made a positive difference to my day. When I’m happier, I naturally feel more hopeful.
Nature: See fitness. But also just being in nature and listening to the stillness or surrounding sounds can make a person feel happier and more hopeful. More and more people are finding health benefits when spending time in nature. These are physical, emotional, and spiritual benefits. Feeling hopeful definitely is part of one’s emotional health. Give me trees!
Meditating: Find the best way to meditate for you. It can be completely focusing on your breath in total silence. It can be a guided meditation. Music, nature, yoga, other fitness, and prayer all have potential for meditative practice.
Books and Movies: Both are great sources for telling stories of hope. Find what appeals to your individual tastes and interests. There are far too many possibilities for me to even make recommendations. What a fun book club idea it would be for readers to bring books or titles that have nurtured feelings of hope and then swap them with one another.
Music: Here is another place where you have to find the right fit. Aaron Copeland’s “Fanfare for the Common Man” always has been an incredible piece filled with hope and possibilities. Edvard Grieg’s “Morning Mood” is another good one where you actually can see the moments in the song when the sun rises above the horizon to greet a new day with hope.
Art: Nature photography and pictures where I feel I can walk into the scene give me hope. I’m not sure what it is, but I think it has something to do with my thoughts while enjoying these types of art. Most of the cards I send actually are crafted from my own photos from nature. I find them visually pleasing and love sending them.
Science: Yep, it surprises me a bit too, but science holds future cures for diseases. Hope and science should not be separated. Researchers don’t live in isolated worlds of facts. They are inherently hopeful that what they theorize, what they believe, will become fact. Their ideas are rooted in curiosity, wondering, possibility, and hope. Hope works through science. My medicines are infused with hope. It’s one of the side effects I don’t mind experiencing.
Self: When you get really quiet, when you dig deep into yourself, you will find your answers and the hope you need. You know what works best for you. Blogging is a way for me to express my hopeful thoughts to others. A journal may be an excellent way to explore your inner most thoughts in a manner that allows you to reflect back on thoughts. The place where hope must absolutely be kept is within your heart. Hope is a little bit like Dorothy in The Wizard of Oz when she discovers there’s no place like home. Hope has been there within each of us all along. From time to time we need reminders. We need to know how to nurture it.
If you have chosen to ignore a timeline provided by medicine and wake up each and every day choosing to live relentlessly, you understand.
If you believe in science that will prevent cancer cells from mutating or becoming treatment resistant, you understand.
If you believe in immunotherapy as the future of cancer cures and treatments, you understand.
If you believe that life is good and that your actions, beliefs, and the strong voice you speak defines hope, you understand.
If you believe in remission, in positive energy, and in hope, you understand.
You’d also be right.
We all need hope. Please share any ideas about hope so we all can benefit. If you are enjoying reading these posts, please consider officially following through your WordPress account or with your email address. Click on the gray “follow” tab in the bottom right hand corner and follow the prompts if interested in following as an email subscriber. Thanks for reading!