Finding A Way – Living with Cancer while Living Well – officially is one year old. I am amazed at how much I’ve written and have grown as a writer. It is a good time to review the year and make goals for moving forward.
In the beginning, I wrote about what I searched for in order to be my best. I sought to find ways to increase my strength and stamina. I wanted to stay motivated and never give up my belief that I am healthy. I planned to lead and live by example. I’ve always searched for purpose and meaning in my life.
I am interested in finding joy, positivity, strength, and hope. Finding A Way involves living with cancer while living well. I wanted to achieve this for myself but also hoped that by writing some of my thoughts and story that I would be able to help others find their way. My intention has always been that anyone reading could come away with something to apply to his or her life whether that person had cancer or not.
Strength and hope are two themes I’ve spent a lot of time on. I suspect they will continue to be common themes for posts. Other themes I plan to explore more deeply are identity, fear, trust, perspectives, and change. I enjoy exploring topics through story, metaphors, and when using narrative lends itself to showing these concepts in action. Using these elements provide a visual hook for me and tends to solidify meaning. I remember things better when I have a story attached or have made a personal connection.
Health and exercise have been and will continue to be repetitive threads in my posts.
Frustrations (and perhaps positive experiences) of my interactions with the medical world as I navigate it from my position as a patient may become more common.
I plan to continue posting positive quotes on Wednesdays to add a bright spot into people’s weeks.
My most viewed post was Stage V and Kardashian Power. I have never watched the reality show or follow them in the news. My intention to live and lead by example and change perceptions, definitions, and conversations around metastatic cancer is still a main goal of mine. I know what the statistics say regarding metastatic breast cancer but I still choose to live with a mindset that has moved past the confining medical constraints and live in expectation with my own. I continue to be surprised at what appeals to people. I find it absolutely hysterical that my most liked post was Exercise and Nutrition. At last count, it had 31 likes. I’m so not an expert.
I don’t feel like I’m an expert in anything. I just write about my feelings and how I’m trying to live well with cancer.
I’ve looked over my posts and have identified some of my favorites. I have many! These are listed below and you may click on any of them if you’d like to look back and reminisce. If you are a new reader, I hope they provide insight into what I write about, how I think, and that you enjoy them. I may repost some of these that I want to highlight again. They are still relevant. There is no need to reinvent the wheel if the wheel I’ve created still rolls well.
I plan to continue to write about my life. I invite you to follow along as a subscriber on WordPress by clicking on the gray or blue “Follow” button, or become an email subscriber and receive an email notification whenever I post something new. Please also remember to like a post if you enjoyed it. Comments are always welcomed. I encourage you to leave one. The prompts I provide at the end of some posts are only a guide.
I appreciate you all as readers and taking the time to read my words. Your emotional support means a lot to me. I wish each of you the very best on your search to find a way, as I keep searching for mine.
Find a way.
What have been favorite posts you’ve enjoyed as a reader?
What topics or themes would you like to read about in the future?
Did the Impressionist Movement only give us artistic masterpieces and inspire other artists for years to come? Please note I use the word “only” loosely. My answer would be an emphatic NO. These artists also gave and continue to give us hope.
Vincent van Gogh may not initially stand out as a hopeful figure. He struggled with both his mental and physical health. His most famous paintings will always be his main contribution to the world. Starry Night is one of my favorites.
Today’s post combines my love for inspiring quotes with blogging. Lately, I’ve come across several quotes from Van Gogh that have blown me away. I do not know in what context he said them or really if they were significant to him at all. I tend to believe they were significant to him based upon their content and some of his paintings. These are some of his words that have inspired me.
“Be clearly aware of the stars and infinity on high. Then life seems almost enchanted after all.” ~ Vincent van Gogh
Life is enchanted. It’s easy to get wrapped up in its day-to-day minutia. There’s a repeating cycle of laundry, groceries, cleaning, yard work, and for me, medical appointments. The time I spend trying to live well with cancer feels so far away from noticing moments of infinity on high. There is always something health related even if it’s a little something. Daily medications are a good example. I see my port bumping out from my chest every day. My wig. These all are routine things but constant reminders of how my life is different. Making time to recognize and take in infinity is a must because it provides balance and perspective to life in my medical world.
It also sometimes feels like everyone is so focused on their own lives that moments where we interact with one another in meaningful ways are fleeting. Stores are understaffed. Customer service has all but disappeared in some businesses. Friends are in a rush. I treasure time with them. Social media, texts, and emojis replace conversations. Living life through social media is not very enchanting. I live in this world, too. Emojis are quick, effective, and sometimes highly amusing.
Looking up at the stars reminds me how big the universe is and that all my big problems are really small. People don’t make time to gaze at the stars and wonder anymore. Unless you live in the countryside far away from man-made light, getting to see a true starry night where shooting stars are common and a person can witness infinity on high is hard. City stars are not the same as country stars. I remember a geography course for graduate credit I took in Ecuador around the year 2000. It was in the jungles off of the Napo River where darkness closed in all around me where I saw the best starscape of my life. Utter darkness met me in every direction except upwards. Stars bedazzled the dark above. I only took them in for a few minutes because we were encouraged not to stay outside very long in the blackness for our own protection. Large cats stalked unseen and unheard in the night. Yet, for a few sacred moments, I saw the heavens like never before. It stays with me as a singular moment I’ll remember forever.
“I confess I do not know why, but looking at the stars always makes me dream.” ~ Vincent van Gogh
Dreams give us hope. We wish upon stars. Stars awe us. Songs are sung wondering what they are made of and comparing them to diamonds. My dad sang Twinkle Twinkle Little Star nightly to me. Starshine has always mesmerized me. If light from stars can travel trillions of miles to reach us, then can’t we also believe our dreams may come true? Can I wish to live? Can I wish to be completely healthy again? So often when we dream while sleeping, we don’t remember what we dreamt when we wake up. We can control what we dream when looking at stars and dream of what makes us happy.
Did Van Gogh say these statements before or after he painted his masterpiece? I don’t know. It doesn’t matter to me. It is more than enough that he said them because it makes me look at my favorite painting of his with more wonder and awe. I work hard to wonder and awe about life as much as possible as someone with metastatic breast cancer.
“If you hear a voice within you say you cannot paint, then by all means paint and that voice will be silenced.” ~ Vincent van Gogh
Am I a painter? No. I am confident there would be voices other than an inner voice confirming it. Even so, I do believe in doing the thing I think I can’t do. I do plenty of new things (new hikes, bike paths, foods, small risks). I do plenty of hard things (conflict, scans, side effects, funerals). I think Van Gogh was thinking about all the opportunities we don’t pursue because we convince ourselves we can’t for any number of reasons. The negative inner voice is quelled when I take a NO and turn it into a YES. Maybe this quote of his is telling me is I should give painting more of a try. I’m up for finger painting. The swirls of color would feel so Van Gogh.
“Close friends are truly life’s treasures. Sometimes they know us better than we know ourselves. With gentle honesty, they are there to guide and support us, to share our laughter and our tears. Their presence reminds us that we are never really alone.” ~ Vincent van Gogh
And . . .
“I wish they would take me as I am.” ~ Vincent van Gogh
Friends take us as we are. Those who don’t are not friends or worth the trouble. My need to belong has always caused me anxiety. There are still times when I feel left out. Like Vincent, I wish everyone would take me as I am. I wish I could be okay with it when some don’t. The people who don’t aren’t worth my time. I’m reminded I only need to belong to myself.
“I think that I still have it in my heart someday to paint a bookshop with the front yellow and pink in the evening…like a light in the midst of the darkness.” ~ Vincent van Gogh
Why a bookshop? He could have said a flower shop, a café, a market, a boutique, or any number of storefronts could be yellow and pink in the evening. Van Gogh also spoke of light. Reading is light. It gives joy, knowledge, and self-awareness. Reading can be a source of hope. Light is hope. Once again, I return to ideas of stars being the light in the midst of darkness. Books are like stars.Books shine light in the midst of darkness.
“Many people seem to think it foolish, even superstitious, to believe that the world could still change for the better. And it is true that in winter it is sometimes so bitingly cold that one is tempted to say, ‘What do I care if there is a summer; its warmth is no help to me now.’ Yes, evil often seems to surpass good. But then, in spite of us, and without our permission, there comes, at last, an end to the bitter frosts. One morning the wind turns, and there is a thaw. And so I must still have hope.” ~ Vincent van Gogh
Call me foolish for I am one of those people who believes that the world can still change for the better. There is more goodness in the world than badness. There will always be more heroes than villains.
Springs and summers follow the coldest winters. Having said that, spring sure took its sweet time this year.
I must have hope. I must maintain hope that treatments are discovered in time to save me, to save everyone with cancer. I believe in targeted therapies that are matched to patients who have a strong likelihood of responding well to those treatments. More research is needed to develop more of these. Research equals hope. Hope is my driving force and motivation in advocating for more research directed to treatments for advanced stage cancers. I do my best to stay strong and healthy which feeds my hope. I do what I can to financially support research for metastatic breast cancer. I still have hope.
Van Gogh has said he wanted his work to express “sincere human feeling.” He succeeded many times over and over again. Hope is a kind of feeling that warms, intensifies, and empowers. How he captured this quality in his art so that it still evokes such an emotional response over a hundred years later is a mystery to me. He had an extraordinary gift as an artist. His art and words continue to give hope.
Alleys are narrow. I envision them as dark, lonely places, filled with scary things and unpleasant smells. Forgotten garbage litters the ground. Feral cats and large rats compete for scraps. Alleys potentially are filled with scary people who I’d like to avoid meeting. I wouldn’t be excited about the cats or rats either. They are not safe spaces. No one hangs out in an alley because it’s relaxing.
Back in my youth, I was much more adventurous. I found myself exploring Amsterdam for a few days on my own. I loved it there. The colors of flowers from the numerous flower markets were intense. I took canal rides to tour the city. I lost myself in a VanGogh museum. I relaxed in a beer garden and wrote postcards. The Anne Frank House where Anne hid from the Nazis for two years was transformative. The tourist in me took in everything possible. I may have mentioned in an earlier post that I make an excellent tourist. I even let a stranger buy me a drink and joined his family for dinner one night.
Amsterdam is also known for its nefarious red-light district. I figured it was fine to see during the day. My plan was to turn around if I felt it wasn’t safe. It was an easy walk to that area. I felt plenty safe but was very much out of my element. Gradually, I became aware I was one of the only women in the area not “working.” Women didn’t seem to be outdoors at all. I could not imagine what the area was like in the dark of night. It was time to turn around, however, I did not relish backtracking through what I had seen.
I spied an alley to my left. At the end of the alley rose a tall church steeple. Surely, I would be in a better environment if I took this shortcut. I couldn’t see anyone lurking about there. It was a short distance. It couldn’t be too bad. Weighing my options, I decided to do it. Was it a good idea? Yes and no. I had to use my hands to shield my eyes from windows on both sides that featured more things I didn’t want to see. I walked with a determined pace that was almost a run. I emerged from the dark alley back into the open sunshine and was thrilled to discover the church steeple I had seen was now a building that sold Christmas decorations. Perfect. I found a different route back to my room.
Where am I going with this?
Sometimes walking down a narrow, dark alley may be the only way to find the light again.
From time to time, something scary has to be experienced in order to get to a better place. The scary thing can be unplanned, unavoidable, and unravel life. Fear can stop us from pursuing or reaching our goals. Fear can stop any meaningful movement forward. Fear can keep us unwell.
I have had a lot of practice with fear as someone living with cancer. There has been information to process and digest. Decisions have been made. Many appointments, tests, and results have been faced that I would rather not have had to deal with at all. The process has repeated over and over with revised information, more decisions, and so many more appointments. Life has been filled with uncertainty in the same way as not knowing what may be lurking and waiting in an alley. It seems I’m always adjusting and adapting. I face all these hurdles because not facing them is more fearful than facing them. The distance has been much longer than what I walked in the alley in Amsterdam.
Functioning well in what I call Fear Alley for the long run is too hard. Bodies in a constant state of stress do not recover. Cortisol is known as the stress hormone. Living in a state of chronic stress where cortisol levels are always elevated affects health negatively. Living in fear is like being in survival mode all the time. It’s high stress. Your body, your mind, your soul can’t recover when in a constant state of fear. Those things are sacrificed so the fear can survive.
Chronic stress is the metaphorical mugger lurking in Fear Alley. Stress can contribute to health conditions such as obesity, ulcers, depression, anxiety, heart disease, high blood pressure, and hair loss. A negative relationship exists between stress and the immune system, affecting the way certain cells find and attack cancer cells. Our natural killer cells don’t work as well in a stressed environment. The immune system works better when unstressed. Stress is very handy to have around in fight or flight situations, but surviving in a heightened state of prolonged fight or flight for months and years is going to cause more problems in the long run that will cause a vicious cycle of ongoing stress. Those living with cancer have better outcomes when stress levels are lower. To remain in some type of warrior state where I feel like I am in a constant battle keeps me in a state of stress. I won’t do it. I can’t. It makes my heart hurt. My body physically shakes. Muscles in my gut tighten as if anticipating a punch. The fear and worry spike my anxiety levels.
What if we believed in hope instead?
What if fear and stress were left behind in the alley and images of the alley just faded away forever? You would be left standing in the sun, absorbing warmth, light, and hope into every cell of your being. Your body would have an opportunity to relax and thrive. You’d sleep more soundly and feel assured that things were going to work out. Thoughts and ideas would connect easily in your mind. You’d feel something in your soul that just felt right. This sounds really good to me! For me, less stress means I’m much calmer and more relaxed. My heart doesn’t race. I don’t shake. My stomach is happier. So am I.
Absorbing warmth and hope into every cell means leaving stress behind. How does this happen? Meditate. A few breaths make a difference. Start with inhaling fully for three or four counts and then slowly exhale for the same number. Repeat this four or five times. It’s a mini-break and gives your body an opportunity to reset. Go for a ten-minute walk if there’s time. You’ll combine deep breathing and get a few minutes of exercise. Other ways you can lower stress are to spend a few minutes writing in your gratitude journal, think of something to make you laugh, or make a quick phone call to a friend. Use affirmations to set the positive, hopeful, no stress mindset that you seek.
Hope isn’t found at the end of a dark alley. It’s found in all the little moments where a thought makes you smile, you spend time doing something that brings you joy, or you take that ten-minute walk. All those moments add up. Hope is found in the heart. Ultimately, this means hope could even be found as you walk through what is fearful. Somehow. Maybe it’s just a small molecule of hope, but it grows as you inch toward the end of the alley. Hope is always within.
Don’t let fear crush hope.
Hope makes living with cancer so much easier than trying to live with it from a place of fear. It’s like permanently living in the Amsterdam flower market or having the Van Gogh museum completely to yourself. Every part of your life feels better with hope. There may be alleys to walk through that are unavoidable. I wouldn’t recommend strolling down any just for the experience. Hope is obtainable without an alley walk. I’d like to think hope is also unavoidable.
We all need to hold on to hope and not let go.
We all deserve the sunny parts of Amsterdam.
All the time.
When can fear be the only path to lead you to something better?
How can you approach fearful places differently and come from a place of hope?